Friday, June 29, 2012

DISORIENTED Really Bad !

This is Crystal
"We" have been really disorienetd the last three days!
 Driving down the road suddenly you dont recognize where you are- disoriented in WalMAr t(which we never are because K kepts track of things in there), having trouble remembering what we are doing in the middle of doing things- not remembering things and really out of it on the "time" thing!
Woke up at 7:40 the other day and thought it was AM when it was PM!  And that isnt the first time in the past 3 days that this has happend!
I wonder what is going on?

Tuesday, June 26, 2012

Shadow Man

Well looks like K is playing with "buttons" again!
This is Crystal-been awhile again since I visited here.
Oh-I have to change that hot pink!
This is better!
Well since last time we are going blind in our left eye-but It may be repairable-so I made an appointment to see the dr and see if both eyes cant be fixed so we can see better!
And hoping that the A1C is down to 7 so the foot can be fixed.

Brandon(the host's grandson) will start home schooling when the schools around here start back.
His ADHD is something the schools around here dont or I should say dont want to deal with- past him to 6th grade when he is only reading at a 3rd grade level.  So this program will start him at his"ability" level and it might take 2 yrs for him to catch up to where he belongs.
So things will not be so quiet here during the day any more.

Shadow Man was out just a little while ago and made a pic on polyvore-he didnt sign it - but it was made my him and K says he was out.
That is really strange because she is usually alert and not let other alters out. So K's guard was down!
Anthony an 8yr old boy alter that K and her past therapist contained has been trying to escape from his "room" he was put in. He is a very destructive little boy!

K has been very concerned over "Nathaniel and Nathan" the "little boys" who live in her therapist"s picture that she had hanging up in her office.  She said that those 2 little boys are trapped in the picture and need K's help to get out! The past therapist still has the pictures and K asks about it from time to time.  But recently she has been thinking about it alot!  I hope the therapist didnt get rid of the picture! I would hope she would ask K if she wants its before she does something with it!

K was approached by a person on polyvore-someone who she thought was going to be a friend to her and she found out that that person had plans to try and mind control K !
K is a very stubborn little girl! And when she found out what was going to be tried on her! Well......
But K is aware of that person and no harm came to her-K just needs guidance at times and this was one of those times!
I wish "her mommy" still talked to her and could warn her about stuff like that!
Her mommy talks to other people about her-so why not just talk to her? It would make K the happiest person in the universe!

Saturday, May 12, 2012

This is Crystal.  I think there is another alter emerging-today is a bad day for this body-no sleep in over a week and the pain doesnt have a word to describe it.
I tried soaking in hot water for the back pain(besides pain pills) but every time I closed my eyes there seemed to be a swirling darkness going around in my head.
It didnt feel like a "doom" darkness but rather an "evil darkness"
I would open-OK K is playing with the color thing here-K go back inside and let me finish.
I would open my eyes and the "evilness" stwill seemed to be there-it was a really weird feeling-I hope that this alter doesnt learn to get past K. Shadowman and Charlie are bad enough when they come out.
Oh Sadie was just out! She is the "shopper alter".  Only spent $450 on line!  Little stinker!

Sunday, April 22, 2012

Tomorrow

This is Crystal-the screen is saying my browser is no longer supported by Blogger-I downloaded that goggle thingy-I hate when they change things around.
We have to go to Johnson City tomorrow early AM for 2 dr appoinments-that means fighting with K to wash her hair.  I wish we could have it short again but since that radiation tx and we lost our hair on that spot- we left it grow out to cover the bald spot.  It hasnt started to grow back in yet.  So our hair is half way down our back and that means fighting with K to wash it!
We took all the pills we can take tonight for the pain-it is just horrible! With this weird weather-hot then cold and rainy- between all the changes- it doesnt do the MS or arthritis any good.  We can only sit for about 10 mins before we have to lay down - and then we can only lay down for about 10 mins before we have to get back up!
I wonder if life will get any better?

Tuesday, April 10, 2012

So Tired !

This is Crystal-any more a half down at Johnson City at the VA hospital wears us out! We had a MRI of the head-for both the brain tumors and the MS status.  We have them now once a year.  That was the goal-yearly instead of every several months.  So I guess you can say that is am improvement!  Right!  But now they need to do something for the terrible pain we have!
K doent have any problem with going in the "spaces-es  tubes-es  fors  your  brains-es"  I am glad or there would be a real problem with that.
We moved the puppies to the kitchen-they learned how to get out the opening for the door- they will be 6 wks on Weds.  Time sure is going fast.  We are keeping Minnie because she is so fragile and we are afraid that someone would not take care of her properly and she would die.  Brandon wanted to know why we could keep all of the! If we had a big yard-well maybe-would have to think about it.
I do believe that someone else has been out because things are done and pics made-but I dont know who.
I am just sssooooooooo  tired!

Sunday, March 25, 2012

As They Say - Shit Happens !

This is Crystal
All I know if today was my birthday (the 25th is the host bodys b-day) I would say it really really sucked !
If anything else happened- I would do more then sit in the bathroom crying like I did !

First- 2 days ago - all those dr appoinments we had- well they were scheduled so close together 2 were not gone too and had to be rescheduled.  Then the "bone dr" handed us a paper and said this is what you need in your diet- your Vit D level is only 24 (needs to be 56) I told him that is better then the "3" that it was before they put me on super duper high doses of Vit D !  Cant follow the diet- am lactose intolerant.  And Lacaid just puts 10 lbs a week on me and I am already really over weight !  So that was one doctor!

Next dr was the foot dr.  He was to give me a new date to operate on my foot they messed up a year ago.  It now has 4 broken toes, the outside bone of the foot is broken and all the tendons across the top of the foot are torn.  And the right foot has 2 broken toes and the outside bone is cracked, So "we" are walking on 2 broken feet ! But the dr said no surgery because my blood sugar is to high.  It is 9 down from 13  - should be 7 to operate.  But then my main dr wasnt even treating my diabetes!  So yes it would be up!  Dumb A**es !!!!!   And they are suppose to be doctors !   So I sat there and cried for about 15 mins in that drs office.  Didnt even check out! I was too pissed!  I dont think they know how painful it is to walk on 2 broken feet!  Pain pills dont even take care of the pain!

But the very first appointment of the day was what put me in such a good mood!  The eye dr.  I have to go to them every 6 months.  She told me I have the worse kind of cateracts that you can have-but not bad enough to operate on -yet- but my left eye has something growing over the retina and may not be able to fix-in ohter words- "you are rapidly going blind in your left eye and if you need to come back before the next 6 months just call and we will see you then".  and "oh by the way - you need to wear dark tinted glasses all the time-inside and out and not the transition lens- permantely tinted dark gray."  So going blind as well as going deaf ! (just got bilateral hearing aids).

Then we got the electeric bill! Of which we shouldnt have had a bill-we are on the low income plan and it should have been paid-but we called the electric company and they said -"no you owe that amt-pay by noon the 27th or we turn off the electric".  DOnt know where that is coming from- havent found that tree where money gows on it-maybe it just didnt start to bloom yet!
Then the car needs inspected,tage for the car are due,post office box rent is due and the puppys need their first shot the end of next month!

Then when I went to turn this thing on tonight -it didnt work! After playing with it for an hour I got it to work! K ran off crying because i told her I didnt know if I could get it to work.  I know one of these times it isnt going to work- dont know what K will do then-there isnt money to buy a new one.
And today being the "birthday" no one remembered it - no presents cuz no money- but k is use to that- but the host's son forgot and there was no cake!  So at 7PM he went and bought a cake and ice cream!
So if anything elese happens - I am going back in the bathroom and crying some more !

Wednesday, March 14, 2012

Update

This is Crystal- I am lousy at keeping this up.
Today we had a water leak...if Oscar wouldn't have ran down to the other end of the yard-we are training him off the leash- we would not have heard the water running under the trailer.   It was the hot water heater.
And naturally living in a trailer they always put the hot water heater in the most inconvenient place there is ! In my walk in closet behind a panel in the wall! Which meant taking out a dozen of those plastic bins that K has all her baby clothes in!
We couldn't get in our bedroom or bath all day!  Had to cancel Brandon's dr appointment and didnt have the room back together till 5 PM !  Funny how K stayed in the back ground- making sure we didnt do anything to her babys or their clothes!
Oh Eva had her puppies a week and a half ago. Two blond twin girls, a black and white girl-has a mickey mouse head tatoo on her butt and black around her eyes up into her ears and one sable colored male. He is really pretty! Eva didnt get her milk right away so we were using an eyedropper to feed them. But we gave her the same formula and now she is feeding the babys. They should open their eyes the end of this week.
We havent had any other alters come out lately. Shadowman was out a couple weeks ago as well as the host-Terry.  Just for one night.  She said K can have her birthday the end of the month. K's birthday isnt till Sept so she is thrilled that she gets 2 birthdays this year! She ask is she can have 2 Christmases and I said a really big loud  NO!
Oh Kalisa came out!  Just look what she did! 
Guess I will have to finish later -she wants to do a pic on "poly bores".
Little stinker needs to keep her fingers off the keuboard!
Eyes  nots  bees  a stinkers-eyes  justeds  takeds  baffs!